Sunday 21 June 2015

The roller-coaster ride continues

Hello Everyone,

Firstly, apologies for the long delay since the last post. This post has been long pending, and finally I sat to write and update you about my life...

Being told I had cancer was a BIG shock back in 2012, then there was even greater disappointment when it relapsed in 2013 and the reason for this delayed post is that I had a second relapse earlier this year. Yep, my counts started dropping towards the end of Jan, and there were more tests done through Feb, and they finally confirmed a relapse!

Needless to say, there were so many mixed feelings, that it was overwhelming...!!! Being me, I never could express it well, but somehow by God's grace I've held on. Everyone around have been encouraging and very very supportive, but for me, enduring this isn't easy to say the less... :) Thoughts do come as to why I am suffering like this, going back and forth with the illness - BUT with the little shaky faith I have, I try and cling onto my Lord's great faithfulness...

My dad mentions this verse, and it relates so well to the phase I'm going through...
            "In the multitude of my thoughts within me, thy comforts delight my soul." Psalm 94:19

So, 2nd relapse... Doctors said I have to have chemotherapy again, followed by another transplant. The thought was totally unacceptable...! Again 2-3 courses of high dose chemo - my body would just not cope! Then a transplant, that too I don't have a full 10/10 match. So it would be a cord-blood or haplo(50-50 match with parents) transplant. I was praying for an alternative... And that's when they told me I could be eligible for a trials treatment called RAvVA, where in I get low dose chemo and it would not be as intensive. It needed a minimum of 6 cycles (1 month each), wherein I get sub-cut injections for 7(working) days and then a break until the next. I didn't have to be hospitalised and could possibly work the rest of the time during the break period.

Traditional chemotherapy aims to kill all cancerous cells, but at the same time kills good cells too. With this trial treatment, it tries to curb the cell cycle of cancerous cells and thus make more room for normal cells to grow. In short explanation... :) After consulting with family and other specialists in the field, we opted for the RAvVA treatment. And it started in March earlier this year. As my neutrophil counts had completed dropped, the first two cycles were not easy. I fell ill with high temperature (neutropenic sepsis) and was admitted in hospital 3 times. There was pneumonia and further lung infection and all...

Anyways, by God's grace, I got through all that and was able to be at home for 3-4days before the start of the 3rd cycle. The 3rd cycle went well, and after the 7days of injection, I was able to get back home. And have been at home for the last 2 weeks. Tomorrow I start my 4th cycle, and hence was desperate to get this blog out and update you all...

The last two weeks, I was able to eat well and put back some pounds, and get fit and ready for the next cycle. Although its low dose therapy, I still have some nausea and tiredness, so do loose weight. That's why I have been eating as much as possible... :) By God's grace, I was able to work too, and thanks to a very supportive team at Cisco, I was able to work in my time and complete the tasks given to me. It's a real blessing to be at #Cisco and have the flexibility to work from home and have the full support of my manager (and higher up) and my team amidst these difficult times.

So that's about it guys... I summed up the last 5 months quickly, to update up you all that I am doing well. I believe that there is a purpose for these tough times, and believe there are much better times ahead. Our Lord Jesus has special plans for me... I pray that he uses me for the extension of His kingdom... I though so unworthy, still am a child of His care! Thanks to you all who have been praying for me. It's these prayers which have kept me strong!

Love and regards to you all...

God bless...

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